Yes, here I am, kind of challenged but lap top on my . . . Lap!
Yesterday, seems so very far away, yesterday . . .
I was collected by the Red Cross bus and driven to a Mobility Wheel Chair Occupational Clinic, whew! The drive there nearly killed me, literally. The driver was a real Kiwi Bloke, lacking in sensibility, the feminine quotient non existent :) he had me into the rear seats, seatbelt fastened, he turned on his GPS and off we went. The seats were dreadful, no head brace, nothing to hold onto. Suspension felt non existent. There I was flopping around like a scarecrow in a hurricane. He asked me how I was doing as the radio played and my eyes were closed, focussing on holding myself together, as he bounced us 35 minutes north. I couldn’t answer beyond, “not too good”, which he didn’t hear or simply ignored. Then, once we reached the town where the Hospital is situated he deviated, taking the most detouring way, corner after corner, as I tried not to throw up. I couldn’t believe he could be so insensible or simply zoned out. We arrived at the hospital where I tried to share the problem with him, he couldn’t, didn’t want to, hear. Never again will I use a driver named John.
The clinic was impressive. Four people along with Emily and Me.
Luckily we had done our research, luckily I had bought an interim chair as a testing device, luckily we have learned to speak up for our selves. Finally they got on board. Maybe we are a bit pushy but who knows what we would have received if we didn’t speak up. I often wonder if I am too outspoken but then stop myself. Hey Richard, if you don’t tell them, who ever them is, they will never know. So we spoke our piece and felt good about it.
But today, I am fucked. It took a great deal out of me and my sleep was not fun. My body, aka muscles, twitched and jerked all night. I could not get comfortable. My breathing was an issue. The concept of being Buried Alive really resonated with me. And here I am, in my studio, in my interim chair, uncomfortable with a neck that is unsupported and aching. Time to stop writing and put my feet up, ciao.